You are not logged in!
To save a listing, you need to be logged in.
Halloween Party-Anders Pittman for a Cure of EB
Anders, Lauren and Drew Pittman announce:
Please join us for our 3rd Annual Halloween Costume & Cocktail Party on Saturday, October 29th.
Time: 6:00 pm - 11 pm
Location: 200 SW Atlanta Avenue, Stuart, FL 34994
Advanced tickets are $50 and $75 at the door. This includes: Entry Fee, Open Bar, Food and Entertainment. There will be live and silent auctions and a costume contest!
Anders Pittman for a Cure of EB Wednesday, August 24, 2016
PriceQuantityTotal Single Registration (1 registrant) $50 Single Registration, 1 registrant allowed, price $50 1 ticket with open bar, food and entertainment I Can't Attend, But Would Like to Support (1 registrant) Free I Can't Attend, But Would Like to Support, 1 registrant allowed, price $0 Additional donation: optional
Invest with confidence EB Research uses industry-standard SSL Secure Socket technology to protect your transaction.Click for company profile EB Research Partnership is a non-profit 501(c)(3) organization. EIN: 27-2417202. All donations are tax deductible to the extent allowed by law. You will receive a US Dollar donation receipt via email. Anders, Lauren and Drew Pittman announce:
Please join us for our 3rd Annual Halloween Costume & Cocktail Party on Saturday, October 29th.
Time: 6:00 pm - 11 pm
Location: 200 SW Atlanta Avenue, Stuart, FL 34994
Advanced tickets are $50 and $75 at the door. This includes: Entry Fee, Open Bar, Food and Entertainment. There will be live and silent auctions and a costume contest!
Anders Pittman for a Cure of EB Costumes 2015 Party Guests This event is in Anders' name to find a cure for EB. All the proceeds will go to The EB Research Partnership (EBRP), the largest nonprofit dedicated to funding research aimed at treating and curing EB. Our events have raised over $30,000 for EB and we are confident this year will be even more successful! We would love to hear from anyone who would like to donate or volunteer to help with the event.
If you have any questions about this event, please contact Lauren Pittman at [email protected].
Anders' EB Story by Lauren Cornell Pittman: The day our first son was born was the best day of our lives! He was absolutely perfect and we were on cloud nine. When we came home from the hospital we noticed a few blisters on his heels from where he was given shots after birth and blisters on his body. The nurse who came to check up on Anders was concerned and told us to go to our pediatrician right away. Alarmed, our pediatrician told us to check back into the hospital immediately.
As the blisters began to form on his fingers and feet, several tests were being run on him. No one had any idea what was causing these blisters. At 5 days old we had to place our son on a gurney and load him into an ambulance to take him to St. Mary's Children's Hospital. After being at St. Mary's for several days, Anders was finally diagnosed with a rare genetic disorder called Epidermolysis Bullosa (EB).
This condition is characterized by the presence of extremely fragile skin and recurrent blister formation, resulting from minor friction or trauma. Children that have EB are called "Butterfly Children" because their skin is as fragile as a butterfly's wing. Only about 200 children in the U.S. are born with EB each year. There are several variations of severity with this condition ranging from the simplex form to the worst case scenarios, junctional or dystrophic where many of these children don't survive.
Fortunately, our 4 year-old son has the simplex form, but he will still have to deal with painful blisters for the rest of his life. Some obstacles he has had to face were crawling and walking. He finally started walking at 19 months. The blisters that formed on the bottoms of his feet from standing up made it too difficult and painful to walk any earlier. He still has his days where he limps and won't wear shoes because he has too many blisters on his feet and ankles. Everyone knows how blisters feel, so imagine having them all over your body and sometimes in your mouth and throat.
These are the issues he faces on a day to day basis. We are talking about this openly because we know that Anders will be okay, but we want to help find a cure for these other children who aren't as lucky as our son.
- Posted on: 2016-10-17 19:28:00
- Classified ad views: 1
- Item ID: 13297233